When Robin Williams passed away in 2014, one of the last things he said was “I just want to reboot my brain.”  An autopsy showed Williams suffered from Lewy body dementia or LBD.  LBD is still relevant for over 1.4 million Americans says Courtney McFarlin, PA, an OSF HealthCare provider who specializes in geriatrics.  It’s the second most common type of dementia behind Alzheimer’s disease. 

McFarlin says LBD is associated with Parkinson’s disease in that they both have Lewy bodies as a medical finding.  This is usually in an autopsy.  If the person is living, McFarlin says an LBD diagnosis is one of exclusion after providers have ruled other things out.  A Lewy body is an abnormal protein clump that forms in the brain’s neurons.  It’s named for Frederic Lewy, the neurologist who discovered it. 

McFarlin says that he symptoms start in conjunction with Parkinson’s type features.

The National Institute on Aging says LBD symptoms include things like visual hallucinations, changes in concentration and alertness, loss of thinking abilities, movement issues, sleep issues, behavioral changes, changes in body temperature, sensitivity to heat and cold, a poor sense of smell, and urinary incontinence. 

Treatment for LBD includes medication like Namenda, Aricept, and Exelon.  Since it’s related to Parkinson’s, Sinemet can help as well.  Patients and their caregivers must also commit to changing daily habits to make the person comfortable. There are also support groups, whether online or in person, for those who help loved ones with dementia. 

Learn more about LBD, by talking to your primary care physician.